The Spiderman

Cade was given a blow up spiderman. He got it tonight and thinks it is the greatest thing ever. Aaron told him to be careful with it and make sure Bella doesn't get a hold of it because she would pop it. So Cade put it on the bed so Bella couldn't get it while he got his pajamas on and brushed his teeth. I was in my room and Cade was in the bathroom when Bella started barking. I went to see what she was barking at (it is usually a bird but it was dark and no birds were out) and found her in Cade's room barking at the blow up spiderman. This wasn't just a little bark she was real upset about this spiderman. So my massive 75 lb. dog was terrified of Cade's blow up spiderman. Aaron tried to get her to come smell it so she wouldn't be so scared but she ran outside away from the spiderman.




It is kinda hard to tell how big she is but that is the edge of our bed. Her head is a lot higher than our bed.

Cade and his spiderman. I think he is a little attached!

We finally have a Neurosurgeon appointment but.....

It isn't until September 2ND. I heard from the Pediatrician last night and talked to the nurse today. The Pediatrician was just calling me to make sure I didn't have any questions that she could try to help answer. She also wants to try Cade on some medicine for his headaches to see if maybe some of them are migraines and he can get some relief. The nurse called today to let us know that when we would be able to get in to see the Neurosurgeon. We will be getting some information on Chiari Malformation and also instructions on keeping a journal. I am not real sure what the journal is about but I do know I will be keeping it until we go see the doctor in September. The nurse also said that Cade's condition isn't severe enough right now to require surgery. The Syrinx is the bubble on his spinal cord and it isn't big enough right now to do any damage. So we will be taking him for MRI's every 6 months to a year to keep an eye on things.

I am so thankful for every ones prayers and concerns. I am also thankful that this isn't as severe as it could of been and that Cade doesn't have something life threatening. We are really able to stand back and see God's hand in all of this and taking care of Cade. My dad said to me today that even though it won't be fun having MRI's so often, the longer we can keep from having surgery or any kind of treatment the better technology will be when they do have to do something.

Cade has done really well with all of his tests and doctors appointments. He did ask me today if he was going to have to go back to the doctor. I told him we had to go back to talk to the doctor next time. He was so happy we only had to talk and they weren't putting that sticky tape and needle in his arm again.

Update

We heard from the doctor's office today. They said that the MRI on Monday just confirmed that Cade has the Arnold Chiari Malformation. We should hear something tomorrow about when we will be able to get in to see the Neurosurgeon. So we pretty much just have to wait and see when we can get into to see him. I was telling my friend today that this is really the worst part. Knowing your child has something and not being able to talk to the doctor who will be treating him.

Thanks everyone again for the prayers and encouragement. We will keep you updated on whatever we here!